Support your child as she learns to deal with the diagnosis and cope with
the changes in her life
Support your child as she learns to deal with the diagnosis and cope with
the changes in her life. Children react very differently to the diagnosis of
a chronic illness. Some kids act very strong, and even say that the diagnosis
does not bother them. Others are very emotional, displaying anger, sadness or
extreme changes in behavioral responses.
There is no way to predict which way your child may respond. However, all
kids will need lots of support, understanding and help in learning to cope with
a chronic illness. They will be experiencing things that most children do not
have the skills to deal with unless they have strong support.Listening to your
child, talking about her feelings, and allowing your child to express her
feelings openly are some of the best medicine your child will receive. You know
your child better than anyone, and are the best person to care for her emotional
needs. At times, this may be hard for you because you, too, are working hard to
cope with the diagnosis.
Remember that it is okay for you to cry with your child or to express your
frustration with the situation. Balance these conversations with others that
are filled with laughter and positive feelings. Your child simply needs to know
that you do not blame her and that you will work through things as a team. Your
child’s feelings about the illness will likely change from time to time.
This is why it is important to keep the lines of communication open at all times.
Skills List
- Learn about your child’s illness and treatment
- Commmunicate openly with your children
- Help your child learn to cope with life changes
- Help your other children, spouse and extended family cope
- Prepare your child for procedures and hospitalization
- Maintain as much normalcy as possible
- Set limits, and provide discipline
- Continue normal expectations for your child
- Communicate with your child’s school
- Help your child explain the illness to others
- Accept help graciously
- Empower your child
- Help your child find a buddy with the same illness
- Handle (unsolicited) advice
- Take care of yourself
For more information, please contact:
Kathy Davis, MSEd, PhD
kdavis2@kumc.edu
(913) 588-6305