Links Regarding Chronic Illness

• Federal Goverment's Site on Childhood Cancer.
  www.cancer.gov/cancerinformation/cancertype/childhood/
• Kid's Health.org
  www.kidshealth.org/kid
• Chronic Illness page.
  www.athealth.com/Consumer/newsletter/FPN_4_5.html
• Kids with Diabetes.
  www.childrenwithdiabetes.com/index_cwd.htm
• Types of Cancer.
  www.oncolink.com/types/types.cfm?c=14
• Kids Supporting Friends with Cancer.
  www.oncolink.com/experts/article.cfm?c=3&s=18&ss=44&id=1586
• Transplantation and Chronic Illness Info.
  www.lpch.org/DiseaseHealthInfo/HealthLibrary/transplant/transadol.html
• Chronic Illness Info for Kids and Parents.
  xpedio02.childrenshc.org/stellent/groups/public/@xcp/@web/@mentalhealth
  /documents/policyreferenceprocedure/web010839.asp
• Info for Parents.
  www.med.umich.edu/1libr/yourchild/chronic.htm
• Asthma
  • www.lungusa.org/asthma
  • www.medlineplus.nlm.nih.gov/medlineplus/asthma.html
  • www.people.virginia.edu/~smb4v/tutorials/asthma/asthma1.html
• Attention Deficit Disorder (ADHD)
  • ccf.buffalo.edu/default.php
• Cancer
  • http://www.candlelighters.org/
  • http://cancernet.nci.nih.gov/cancerinfo/pdq/pediatrictreatment
  • http://www.childrensoncologygroup.org/ (look at the section titled “Lay Summaries”)
• Cystic fibrosis
  • www.cff.org/
  • www.nlm.nih.gov/medlineplus/cysticfibrosis.html
  • www.cfri.org/
• Epilepsy
  • http://www.drkoop.healthology.com/focus_index.asp?f=epilepsy&b=drkoop
  • http://accessible.ninds.nih.gov/index.htm
  • http://www.epilepsyfoundation.org/
• Juvenile diabetes mellitus
  • www.jdrf.org/kids
  • www.cdc.gov/diabetes/faqs.htm
  • www.niddk.nih.gov/health/diabetes/pubs/dmstats/dmstats.htm
• Juvenile rheumatoid arthritis
  • www.nlm.nih.gov/medlineplus/juvenilerheumatoidarthritis.html
  • www.arthritis.org/
  • www.kidshealth.org/kid/health_problems/bone/juv_rheum_arthritis.html
• Lupus
  • www.lupus.org/
  • www.nlm.nih.gov/medlineplus/lupus.html
  • www.kidshealth.org/parent/medical/arthritis/lupus.html
• Sickle Cell Anemia
  • www.nlm.nih.gov/medlineplus/sicklecellanemia.html
  • www.ascaa.org/
  • www.emory.edu/PEDS/SICKLE
  • www.kidshealth.org/parent/medical/heart/sickle_cell_anemia.html

If you know of a web site that is a good resource, please send it to us.  We will check it out and include it on this list.

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For more information, please contact:

Kathy Davis, MSEd, PhD
kdavis2@kumc.edu
(913) 588-6305